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A Week Feels Like A Lifetime

So Kaydence, my mother, and I have been here in Baltimore for a week. A very, very long week. I am afraid this may be the longest eight weeks of my life. I have ventured down to the business center in our condo building to locate the computer on which I am typing. I have to be super mindful to log off of everything when I am done! I just can't blog from my phone anymore. It's too hard! But probably not as hard as eating has been for Kaydence.

I'll attempt to give a good description of what she is tolerating thus far. The beginning of the week was the KKI staff evaluating and testing her. The first three meals I fed her. I would feed her what she normally eats at home (peanut butter mixed with mashed banana) and then attempt to feed her what she does not prefer, like strawberry applesauce. Therapists were evaluating her BEHAVIOR during this time. This whole program is actually behavioral therapy mixed with occupational therapy and speech therapy, the majority of it being be…
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We are here!

Saturday, we began our journey to Baltimore, for the Intensive Feeding Clinic at Kennedy Krieger Institute. Tommy, my mom, Kaydence and I successfully made it to Love Field and flew Southwest to Baltimore, where a nice lady named Lorraine would meet us and take us to our apartment. Kaydence was a great flyer! She climbed all over her daddy and was up and down in the seat, peeking over the tops at unsuspecting strangers. She manhandled the pretzel bags for the sound they made and watched videos of her siblings and random kids online. We snapchatted away as well. She only yelled a couple of times and the lady in front of us commented on how well she did.

Lorraine came and picked us up as promised. She manages Chase Street Properties in Baltimore, and they began as a company specializing in medical relocation services. She is an angel here on earth for sure. From the moment I spoke with her on the phone, I knew she was sent to help us. She brought us to our little apartment, explaining l…

Challenges, Acceptance, Winning, Defeat

Life with Kaydence always presents us some challenges. Last spring, I started a little business, which I really wanted to emphasize embroidered items for kids, and ladies retail apparel, but has morphed into custom heat transfer shirts mostly. It's okay however my business venture turns out, because the ultimate goal for me is to make a little income and still be flexible enough to accommodate Kaydence's appointments. I have really been blessed and kind of busy. Now, the retail part is not working as I had hoped, but I think in our area, a storefront is just better. I've always wanted to own a gift shop that had wedding registry items and baby things, but that just hasn't been feasible...maybe someday it could still happen. But this custom apparel? It works. So well in fact, that I started working in my little crafty area and then it scattered into my dining room. Tommy being the neat guy that he is, well, it wore on him a little. He was very patient all summer. One d…

School Smacked Us in the Face!

I must preface this whole entry with: I'm typing on my phone. Please don't judge me based on potential errors. Ha! School started and man, did it ever smack us in the face here in the Neyland household. It started great. Kids all at school. Mom acting like a modern day June Cleaver: walking a few miles at the track each morning, planning meals, cooking every night, and getting all of my shirt orders done. Then....BAM! "Wendy, this is the school nurse and Kaydence is sick." Or "Wendy, I'm so sorry I'm calling again, Abigail has a headache." Within the first few weeks of school, all three of my kids have missed due to illness. Kaydence missed about 7 days off and on. She'd be done and then I'd get a school call. I think we finally got her straightened out, but geeze Louise, it took a while. She had a stomach bug, an ear infection, and a mycoplasma infection. Oh, wait, haven't heard of that? Me either. Apparently it falls within the same ca…

She is an official Kindergartener

So Kaydence Grace begins Kindergarten officially tomorrow. It's hard to wrap my brain around this in some ways, but then it feels like the norm because she has been at school in PPCD since a few days after she turned three.

For those who are unfamiliar with this, Early Childhood Intervention (ECI) services begin very early for kids like K. She actually was about a year old before we were introduced to the program. It seems like we are never helped to the help we need until it is later than it should be! ECI services include therapy of different kinds, and probably some other stuff, but we weren't able to receive anything but Occupational Therapy and that is a whole other story for later. ECI services terminate at age 3 and kids enter their local school districts for services. Kaydence has make big strides since and I am very thankful for our school district.

But tomorrow she starts Kindergarten as an actual 5 year old with the other kids her age. It is truly bittersweet. I kno…

Wade's Wild Ride

I'm going to preface this with "July has not been a super easy month." Kaydence doesn't want to eat, I lost a person I'm going to miss, I keep having dang migraines, my insurance got cut off early and that is not easy to fix, Vacation Bible School at church happens, and now Wade has broken his arm. It is also appointment kick off time, and now in addition to Kaydence's appointments, we now have a boatload for Wade complete with higher copayments for specialists. Please hear the excitement that I am radiating at this moment.

I can't fix most of these issues, but I can fix the way I react. I am trying to do this boutique thing and these headaches! Why? I have to take meds, and I can't do what I need to do for this business. It's frustrating. VBS at church. I have been director enough years that I need to pass it on. It's time. I enjoy VBS, but I lost my oomph for it recently. It still turned out great with great attendance. There are kids who vi…

Smiles Today

Last week was a busy week. Wade had a district baseball tournament. It was hoooootttt. Three days in a row at 5:30 PM, on a hot July afternoon is not cool (as in "cool man" and in temperature.) The first two days we were on the dugout and fan side facing the setting sun. I purchased Kona Ice from my beautiful friend Karey, and poor Kaydence Grace sucked them down and was just laying there, sizzling like bacon in a frying pan. I was sweating so profusely that Abigail made sure to tell me how bad I smelled. I was so exhausted I think that I am still catching up. By Wednesday night, I left Kaydence to stay with her Aunt Jenni so at least she wouldn't suffer another night.

Also on Wednesday, I turned 40. Forty years old. I don't feel 40. Well, I did after the late afternoon heat three days in a row, but I'm trying to process what 40 is supposed to be. I commented on Facebook how thankful I actually am to be another year older, because so many do not make it to that a…