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I'm just out of catchy titles

So after tomorrow we are on the two-week plus a couple of days countdown. I cannot even believe it. Time has felt so slow some days, and on others it seems as if time is just flying. I've had quite a bit of thinking time most days. Probably too much thinking time. A strict part of my happiness level depends on avoiding political garbage. Unfortunately most every hospital television is on CNN, but I think they need to rename it to something more like - Suck All Happiness Out of America television network. Pot Stirrer television might also be fitting. Other networks could also fall into this category. My favorite thing to do when we get in is turn on TV Land or HGTV because it reminds me of a time when television was fun to watch. Shows supplied laughter and didn't just show people running each other down or solving crimes with some of the nastiest tutorials on how to murder someone. I've decided that the only way to bring up a better generation of kids, as a parent, is to t…
Recent posts

I Just Cannot Escape Vomit

This week has already been off to a rough start. Actually, EVERY week is a rough start. Kaydence has a horrible Monday and by Friday is amazing. Saturday is okay and then comes Sunday. I dread Sundays now. I like the daytime, but Kaydence wants to stay awake with the people who party behind our apartment building.

To explain what is behind our apartment building will tell you a lot about it. If you tell anyone in Baltimore that Baltimore Street is right behind our building, they all react the same way. Everyone from the area knows that it is the party scene. Not just any party scene. It's the scene that I would place my hands over Wade's eyes everyday driving through if he were with me. I can tolerate seeing the many homeless people on certain corners, but women who appear to be prostitutes, and clubs advertising strippers...well...that is a little different. Some may refer to these as "gentlemen's clubs," but let me tell you, I don't see many gentlemen stand…

The Griswolds, I mean the Neylands, take on Baltimore

We have had an eventful time here in Baltimore since my last post. Kaydence has been undergoing quite a bit of therapy. She has Occupational Therapy (OT) and Speech Therapy four days a week, and Physical Therapy two days a week. I am sincerely thankful for all of it. Speech and OT are a regular part of the feeding program, and PT is our bonus.

Speech and OT can address lots of issues, but for Kaydence, Speech and OT both focus on oral motor skills and acceptance of new textures. OT also works on self-feeding skills. We are making slow progress here, but we will make more progress before we leave. We will never again have the opportunity for such an intensive workout so many days in week, but I sure wish she could. I wish we could have had much more therapy when she was younger and maybe we wouldn't be so far behind. I also feel like we are starting over on the texture acceptance because we were grinding up cheerios, puffs, and crackers when we went to Dallas for therapy, but here …

A Week Feels Like A Lifetime

So Kaydence, my mother, and I have been here in Baltimore for a week. A very, very long week. I am afraid this may be the longest eight weeks of my life. I have ventured down to the business center in our condo building to locate the computer on which I am typing. I have to be super mindful to log off of everything when I am done! I just can't blog from my phone anymore. It's too hard! But probably not as hard as eating has been for Kaydence.

I'll attempt to give a good description of what she is tolerating thus far. The beginning of the week was the KKI staff evaluating and testing her. The first three meals I fed her. I would feed her what she normally eats at home (peanut butter mixed with mashed banana) and then attempt to feed her what she does not prefer, like strawberry applesauce. Therapists were evaluating her BEHAVIOR during this time. This whole program is actually behavioral therapy mixed with occupational therapy and speech therapy, the majority of it being be…

We are here!

Saturday, we began our journey to Baltimore, for the Intensive Feeding Clinic at Kennedy Krieger Institute. Tommy, my mom, Kaydence and I successfully made it to Love Field and flew Southwest to Baltimore, where a nice lady named Lorraine would meet us and take us to our apartment. Kaydence was a great flyer! She climbed all over her daddy and was up and down in the seat, peeking over the tops at unsuspecting strangers. She manhandled the pretzel bags for the sound they made and watched videos of her siblings and random kids online. We snapchatted away as well. She only yelled a couple of times and the lady in front of us commented on how well she did.

Lorraine came and picked us up as promised. She manages Chase Street Properties in Baltimore, and they began as a company specializing in medical relocation services. She is an angel here on earth for sure. From the moment I spoke with her on the phone, I knew she was sent to help us. She brought us to our little apartment, explaining l…

Challenges, Acceptance, Winning, Defeat

Life with Kaydence always presents us some challenges. Last spring, I started a little business, which I really wanted to emphasize embroidered items for kids, and ladies retail apparel, but has morphed into custom heat transfer shirts mostly. It's okay however my business venture turns out, because the ultimate goal for me is to make a little income and still be flexible enough to accommodate Kaydence's appointments. I have really been blessed and kind of busy. Now, the retail part is not working as I had hoped, but I think in our area, a storefront is just better. I've always wanted to own a gift shop that had wedding registry items and baby things, but that just hasn't been feasible...maybe someday it could still happen. But this custom apparel? It works. So well in fact, that I started working in my little crafty area and then it scattered into my dining room. Tommy being the neat guy that he is, well, it wore on him a little. He was very patient all summer. One d…

School Smacked Us in the Face!

I must preface this whole entry with: I'm typing on my phone. Please don't judge me based on potential errors. Ha! School started and man, did it ever smack us in the face here in the Neyland household. It started great. Kids all at school. Mom acting like a modern day June Cleaver: walking a few miles at the track each morning, planning meals, cooking every night, and getting all of my shirt orders done. Then....BAM! "Wendy, this is the school nurse and Kaydence is sick." Or "Wendy, I'm so sorry I'm calling again, Abigail has a headache." Within the first few weeks of school, all three of my kids have missed due to illness. Kaydence missed about 7 days off and on. She'd be done and then I'd get a school call. I think we finally got her straightened out, but geeze Louise, it took a while. She had a stomach bug, an ear infection, and a mycoplasma infection. Oh, wait, haven't heard of that? Me either. Apparently it falls within the same ca…