Getting a Little Excited!

So Kaydence Grace's Baptism gown arrived today. I'm getting excited. I watched out of my office window a while just waiting on the Fed Ex guy to show up. Finally he did and when I opened that box, I have to admit I teared up. I can't wait to dress my baby in this dress and stand with her in the front of that church and make that covenant with God that we will raise her as His child.

Comments

She is an official Kindergartener

So Kaydence Grace begins Kindergarten officially tomorrow. It's hard to wrap my brain around this in some ways, but then it feels like the norm because she has been at school in PPCD since a few days after she turned three. For those who are unfamiliar with this, Early Childhood Intervention (ECI) services begin very early for kids like K. She actually was about a year old before we were introduced to the program. It seems like we are never helped to the help we need until it is later than it should be! ECI services include therapy of different kinds, and probably some other stuff, but we weren't able to receive anything but Occupational Therapy and that is a whole other story for later. ECI services terminate at age 3 and kids enter their local school districts for services. Kaydence has make big strides since and I am very thankful for our school district. But tomorrow she starts Kindergarten as an actual 5 year old with the other kids her age. It is truly bittersweet. I ...

My Lowest Point

Since we have found happier ground right now , I thought I'd take a moment to share with you what has been my lowest point in this journey thus far - and I hope it is the lowest point period! I know, you're probably wondering why I am regressing to this story, but there may be someone out there who has felt this way and didn't know how to make sense of it, or feels guilty for feeling that way. So the day that I got that call that my amniotic fluid had tested positive for CMV, I texted my pastor and she came right out that afternoon. Tommy, the kids, and I were outside swinging and playing in the sunshine for a little bit when she arrived. She and I went in the house for a little while to pray and counsel. Now, keep in mind, I had already did a lot of thinking before she got there. We again talked about the possibility that God might just choose to take this tiny soul to be with Him. I might not ever know her outside of the womb on earth, but I would know her in Heaven. Pa...

We are halfway done!

I cannot believe we are halfway done with this journey here in Baltimore! I do feel like we are making some gains here and I am thankful God placed Kennedy Krieger Institute in our life. First of all, I only wish we could have started this a few years ago because when I am on the CMV mommies page on Facebook, I see what other kids with her same symptoms and diagnoses can do versus what Super K has not yet accomplished. "But Wendy, you shouldn't make comparisons!" Yet all parents do. Some days I think maybe I have let her down by not being pushier about her therapy, but then again this has been uncharted territory every single minute of her life. No two CMV kids are alike in their ailments because each brain is affected differently. Once again I am so thankful we are at Our Children's House. It is a nice walk to and from therapy and the weather has been pretty amazing. When we got here it was Texas hot and then it cooled off really low, only to level off to really nic...

Daily Living with Grace

Search This Blog