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She is an official Kindergartener

So Kaydence Grace begins Kindergarten officially tomorrow. It's hard to wrap my brain around this in some ways, but then it feels like the norm because she has been at school in PPCD since a few days after she turned three. For those who are unfamiliar with this, Early Childhood Intervention (ECI) services begin very early for kids like K. She actually was about a year old before we were introduced to the program. It seems like we are never helped to the help we need until it is later than it should be! ECI services include therapy of different kinds, and probably some other stuff, but we weren't able to receive anything but Occupational Therapy and that is a whole other story for later. ECI services terminate at age 3 and kids enter their local school districts for services. Kaydence has make big strides since and I am very thankful for our school district. But tomorrow she starts Kindergarten as an actual 5 year old with the other kids her age. It is truly bittersweet. I ...

My Lowest Point

Since we have found happier ground right now , I thought I'd take a moment to share with you what has been my lowest point in this journey thus far - and I hope it is the lowest point period! I know, you're probably wondering why I am regressing to this story, but there may be someone out there who has felt this way and didn't know how to make sense of it, or feels guilty for feeling that way. So the day that I got that call that my amniotic fluid had tested positive for CMV, I texted my pastor and she came right out that afternoon. Tommy, the kids, and I were outside swinging and playing in the sunshine for a little bit when she arrived. She and I went in the house for a little while to pray and counsel. Now, keep in mind, I had already did a lot of thinking before she got there. We again talked about the possibility that God might just choose to take this tiny soul to be with Him. I might not ever know her outside of the womb on earth, but I would know her in Heaven. Pa...

How's it Going?

When we arrived here in Baltimore on Sunday, I didn't truly know what to expect, but have had high hopes everything will be great. I mean, we got a room when we didn't think we would and Kaydence had been eerily good all the way here except for the one meltdown. Monday morning, I put my dad in an Uber to the airport with a printed plane ticket because there was no way I was going to trust him working any new app on his phone at such late notice. Even Dad was like, "Nooooo. Don't trust me with an app." It makes me chuckle just thinking about it. We got ready for the day. I was pleased to find that all of Kaydence's breakfast essentials were available in the house already. I just needed to get her some whole milk and make sure we don't run out of Carnation. That was another super blessing. We made our way to the Kennedy Krieger Institute on foot. Yes, we walked. That may be my favorite part of where we are staying. We stayed in an office and met all of our...