Skip to main content

Crazy Days & Sleepless Nights

The title of this post probably makes you think of college days - but no college stories here! So there hasn't been a ton of change in this family lately. Kaydence is still a little over 12 pounds. She is working to sit up, but we haven't quite reached that point yet. I was super excited last week that during her OT session, she grabbed a hold of her new little toys and put them right to her mouth. That is a big deal for her! We work each day to touch our toes, to do our sit ups, and to stretch our muscles. She also keeps rolling over on her side. I know she is going to figure out that she can roll over completely without being in a fit of rage.
This past week during OT, we also got a Bumbo seat. It has been both a blessing and a curse. Abigail, developing into her middle child self, has decided that it is okay for her to pick up Kaydence and put her in the little seat. The first day she did this I was in the bathroom putting on my makeup and listening to Kaydence fuss a little while laying on her playmat in the living room. Then she got quiet. I thought Abigail was watching cartoons. All of a sudden, Abigail runs in and says "Momma I put Kaydence in her seat!" Literally, my heart dropped. I tried to run in the living room in a calm fashion, because Abigail was just trying to be helpful, and Kaydence was sitting perfectly in her seat - happy as can be. I told Abigail not to pick her up unless I was in the room with her. Saturday she did the same thing when Tommy and I stepped out on the porch. Sunday she did it again when I was standing on the other side of the room. I said, "Abigail, I told you not to pick her up." She corrected me, "But you said not to pick her up unless you were in here with me. You're right over there!" Oops. Point for Abigail, a 3-year-old. I clarified that I need to be sitting with her. She is way too smart to not watch like a hawk all the time.
Continue to pray for Kaydence, as she still needs prayer for her development. And pray for me tonight I ask. For the first time since we found out about Kaydence having issues, I will be singing in church tomorrow - at a funeral. Kind of ironic. Well, it really isn't ironic. It's God. I prayed Sunday night and God and I had a chit chat about my singing. It's not like I will ever be a professional, but I love to worship in song to Him. I haven't been able to do that since last December. I asked that He help me figure out when it is time to go back and BAM! Tommy's Great Aunt passed away on Sunday morning and Monday I was asked to sing at her service, in our church. God has such a sense of humor. I'm a little emotional anyway when I sing, and this is Aunt Margie's service! I'd like to not fall apart. So I humbly ask for some prayers that I can get through the songs without choking up in any way. Thanks in advance friends!


Popular posts from this blog

A Week Feels Like A Lifetime

So Kaydence, my mother, and I have been here in Baltimore for a week. A very, very long week. I am afraid this may be the longest eight weeks of my life. I have ventured down to the business center in our condo building to locate the computer on which I am typing. I have to be super mindful to log off of everything when I am done! I just can't blog from my phone anymore. It's too hard! But probably not as hard as eating has been for Kaydence.

I'll attempt to give a good description of what she is tolerating thus far. The beginning of the week was the KKI staff evaluating and testing her. The first three meals I fed her. I would feed her what she normally eats at home (peanut butter mixed with mashed banana) and then attempt to feed her what she does not prefer, like strawberry applesauce. Therapists were evaluating her BEHAVIOR during this time. This whole program is actually behavioral therapy mixed with occupational therapy and speech therapy, the majority of it being be…

What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best pl…

We are here!

Saturday, we began our journey to Baltimore, for the Intensive Feeding Clinic at Kennedy Krieger Institute. Tommy, my mom, Kaydence and I successfully made it to Love Field and flew Southwest to Baltimore, where a nice lady named Lorraine would meet us and take us to our apartment. Kaydence was a great flyer! She climbed all over her daddy and was up and down in the seat, peeking over the tops at unsuspecting strangers. She manhandled the pretzel bags for the sound they made and watched videos of her siblings and random kids online. We snapchatted away as well. She only yelled a couple of times and the lady in front of us commented on how well she did.

Lorraine came and picked us up as promised. She manages Chase Street Properties in Baltimore, and they began as a company specializing in medical relocation services. She is an angel here on earth for sure. From the moment I spoke with her on the phone, I knew she was sent to help us. She brought us to our little apartment, explaining l…