Skip to main content

What?! A New Post...Finally!

So it's been nearly 2 months since my last entry on this blog. For some reason, I was able to get to my dishes done and all of my other stuff done early. Hmmmmm....Maybe it's because I have now established a routine bedtime for my kids? Well, at least I am trying to anyway.

Kaydence Grace is 9 months now. NINE MONTHS! How does time pass so quickly? Tomorrow is the anniversary of the day of the sonogram that started all of this. I am so thankful that Cheryl had the knowledge and wisdom in her profession to catch that something was amiss about that sonogram. Others might have missed it or dismissed it and where would we be had that happened? I will never, ever, ever, ever forget laying there and thinking, "So this is what it feels like to be one of those women. One of those women who go to the doctor and their whole world turns upside down." You know that many women go to the doctor expecting things to be fine, and then all of a sudden, their dreams of the healthy baby they are carrying are just shattered. I have always thought about those women and wondered how do they hold it all together to walk out of that office? Then I became that woman. And I walked out of the office like nothing was wrong. However, the day that Kaydence was born, I found out that there is a side door, and I was asked if I wanted to be escorted out to my car that way (but I walked out the front door with Denise, who then drove me to the hospital, of course.) Cheryl's words are forever burned in my mind as are the words that Tommy and I heard leading up to Christmas last year.

Other words have been burned into my heart. Especially the Psalms. Psalms 91 and 34 in particular. I try to read 91 to Kaydence each day and 34 is my calming point. God speaks to my heart there. I'll be honest in saying some days I just want to cry and my pathetic human nature almost questions why all of this? Then I stop and realized how blessed I am. Kaydence is a gift everyday. She wears me out with her late night play sessions, but those open-mouthed kisses and sweet smiles remind me that we are children of God and He is in control of this.

Tomorrow we go visit our newest specialist...Dr. So, the neurologist. I am preparing for him to tell me all kinds of negatives based on past MRI readings, but I've come to this conclusion...it's all hooey. My faith is in God and the healing He can provide. I pray against seizures and handicaps for my child. (Feel free to join me in that prayer!) Medicine can tell us all kinds of stuff, but every doctor thus far has ended with, "But we don't really know what to expect. Anything is possible." And anything IS possible. I am determined not to place a boundary on Kaydence like, "Oh no. Doctors said you can't walk so we just won't try." Baloney! We will do everything and then some just to prove the negatives wrong. We also will not label her with an issue. I want God to control this and a label is my simple-minded way of trying to control and determine her outcome.

So far, her head control has greatly improved. She likes to lean forward in her car seat to watch her sister. She laughs and talks back to us. She is improving in trunk strength. She can grasp a toy hanging over her and bring it to her mouth. She can somehow, and I'm not sure how, scoot or roll a couple of feet off of her playmat. We will soon try solid foods too. Pray that goes well. Oh, and she is getting her two bottom teeth! She has a lot of catching up to do, but there are other babies her age from her due date that don't sit up either, so I'll just count our blessings one by one as they come. And I think that sums up our life in general these days. Count your blessings, name them one by one. Count your blessings see what God has done. Are you humming the song yet? I am!

Comments

Popular posts from this blog

She is an official Kindergartener

So Kaydence Grace begins Kindergarten officially tomorrow. It's hard to wrap my brain around this in some ways, but then it feels like the norm because she has been at school in PPCD since a few days after she turned three. For those who are unfamiliar with this, Early Childhood Intervention (ECI) services begin very early for kids like K. She actually was about a year old before we were introduced to the program. It seems like we are never helped to the help we need until it is later than it should be! ECI services include therapy of different kinds, and probably some other stuff, but we weren't able to receive anything but Occupational Therapy and that is a whole other story for later. ECI services terminate at age 3 and kids enter their local school districts for services. Kaydence has make big strides since and I am very thankful for our school district. But tomorrow she starts Kindergarten as an actual 5 year old with the other kids her age. It is truly bittersweet. I ...

My Lowest Point

Since we have found happier ground right now , I thought I'd take a moment to share with you what has been my lowest point in this journey thus far - and I hope it is the lowest point period! I know, you're probably wondering why I am regressing to this story, but there may be someone out there who has felt this way and didn't know how to make sense of it, or feels guilty for feeling that way. So the day that I got that call that my amniotic fluid had tested positive for CMV, I texted my pastor and she came right out that afternoon. Tommy, the kids, and I were outside swinging and playing in the sunshine for a little bit when she arrived. She and I went in the house for a little while to pray and counsel. Now, keep in mind, I had already did a lot of thinking before she got there. We again talked about the possibility that God might just choose to take this tiny soul to be with Him. I might not ever know her outside of the womb on earth, but I would know her in Heaven. Pa...

We are halfway done!

I cannot believe we are halfway done with this journey here in Baltimore! I do feel like we are making some gains here and I am thankful God placed Kennedy Krieger Institute in our life. First of all, I only wish we could have started this a few years ago because when I am on the CMV mommies page on Facebook, I see what other kids with her same symptoms and diagnoses can do versus what Super K has not yet accomplished. "But Wendy, you shouldn't make comparisons!" Yet all parents do. Some days I think maybe I have let her down by not being pushier about her therapy, but then again this has been uncharted territory every single minute of her life. No two CMV kids are alike in their ailments because each brain is affected differently. Once again I am so thankful we are at Our Children's House. It is a nice walk to and from therapy and the weather has been pretty amazing. When we got here it was Texas hot and then it cooled off really low, only to level off to really nic...