Skip to main content

She Just Keeps On Getting Better

Today, Kaydence is 6 weeks old! Everyday when I walk into the NICU I am amazed at how her weight just jumps up. The last weight I saw was just a little of 5 pounds 10 ounces from Sunday. She will be more than that when I go see her today. Her doctor this week has upped her feeding amount to 55 cc's I believe and she is steadily taking more full feedings by bottle instead of her feeding tube.

Kaydence makes the sweetest sounds...but doesn't cry a whole lot. Yet. She seems to be working up to it. I am thankful she seems to be a happy little girl. There have been other neighbors in the NICU, who have gone home already, who haven't been so happy. It's heart breaking. There are babies there that people don't want, or parents there who don't appreciate the care their babies receive. I just cannot imagine either one! And I am not judging, because I don't know all the circumstances.

The nurses there are angels and probably don't know it. At least that's how I see them. I certainly could not nurse as a profession, but these people have been gifted by God to do this. We all have gifts bestowed by God, but I believe many of us do not realize what they are. I just keep feeling a pull myself, to do something different than what I have been doing. I feel so blessed by God that I want to share it with others so they too, can experience Christ. I keep praying and reading the Bible, and I must add that God and I are talking a lot lately, so we shall see what it is that I need to do...later.

Later is a bittersweet word. Each time I pray, read the Word, or even listen to a sermon, my answer is continuously "be still and wait" or "later." I am getting much better at accepting this answer. I want an answer about how Kaydence will be NOW, but I won't get an answer until LATER. CMV is progressive for a while, but I have faith that later Kaydence will be better. I feel that God is healing her even now as I type. I have hope for her life and I know that God is using her now for His glory. I have hope and faith that "later" things are going to be okay, no matter the outcome, because after all, if God is for us, who can be against us?

Comments

  1. Oh wendy,maybe GOD will tell you LATER what he needs you to do or be but just know that right NOW you are a MOMMY. A caring and loving person. YOU have touched many children's lives. YOU have made a difference. YOU have showN many OF us by example HOW a child of GOD acts and reacts. I am proud of you and I strive to be a better Christian because of KAYDENCE GRACE NEYLAND!

    Love,

    Ms Connie

    ReplyDelete

Post a Comment

Popular posts from this blog

A Week Feels Like A Lifetime

So Kaydence, my mother, and I have been here in Baltimore for a week. A very, very long week. I am afraid this may be the longest eight weeks of my life. I have ventured down to the business center in our condo building to locate the computer on which I am typing. I have to be super mindful to log off of everything when I am done! I just can't blog from my phone anymore. It's too hard! But probably not as hard as eating has been for Kaydence.

I'll attempt to give a good description of what she is tolerating thus far. The beginning of the week was the KKI staff evaluating and testing her. The first three meals I fed her. I would feed her what she normally eats at home (peanut butter mixed with mashed banana) and then attempt to feed her what she does not prefer, like strawberry applesauce. Therapists were evaluating her BEHAVIOR during this time. This whole program is actually behavioral therapy mixed with occupational therapy and speech therapy, the majority of it being be…

What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best pl…

We are here!

Saturday, we began our journey to Baltimore, for the Intensive Feeding Clinic at Kennedy Krieger Institute. Tommy, my mom, Kaydence and I successfully made it to Love Field and flew Southwest to Baltimore, where a nice lady named Lorraine would meet us and take us to our apartment. Kaydence was a great flyer! She climbed all over her daddy and was up and down in the seat, peeking over the tops at unsuspecting strangers. She manhandled the pretzel bags for the sound they made and watched videos of her siblings and random kids online. We snapchatted away as well. She only yelled a couple of times and the lady in front of us commented on how well she did.

Lorraine came and picked us up as promised. She manages Chase Street Properties in Baltimore, and they began as a company specializing in medical relocation services. She is an angel here on earth for sure. From the moment I spoke with her on the phone, I knew she was sent to help us. She brought us to our little apartment, explaining l…