Skip to main content

Every Day with Jesus is Sweeter than the Day Before

Today started off okay, then went about as south as it can get, but ended up one of the best days EVER! I went home yesterday and boy, homecomings are sweet these days! It doesn't get much better than little arms being so excited to wrap around your neck. As I drove in to my parents' house, there was sweet little Abigail jumping and waving at me. Of course my mother had her out "helping" her in the yard.

Then today I got to wake up with my kids. It used to be such a chore to get up in the mornings, and I have to admit that physically I am still very exhausted, but waking up to my kids is a blessed feeling each day now. I was even excited to go to Dr. Blackwell's office today. I carried him, his nurses, and Cheryl strawberries from the Berry Patch in Fairfield. My cousin owns it and I must say the berries are super sweet and awesome. Yes, this is a quick commercial for him! My day was made when Dr. Blackwell thanked me for the berries and I told him they were a thank you for taking such good care of us. Then he said, "You've been an inspiration to us all." Yes it did make my day for my doctor to say that. I don't think I've done anything great to be inspiring, but God sure has. Each day with Jesus just keeps getting better right now.

Two days ago, her doctor came in while I was there and asked if I had everything ready at home. I said that we were working on it and he said that was good. She will finish her valganciclovir treatments on the 14th and he wouldn't be on duty next week, but he will work with the other doctor on her release. What?!!! Did I hear that correctly? Yes I did. If all keeps going well, we may get to come home next week! When Tommy told Wade, Wade just yelled "WHOO HOOOO!" We are all so tired of being apart from one another. I can honestly say that my kids now appreciate their parents after all of this.

So Kaydence tonight weighed 5 pounds 14 ounces. She came off of her cannula yesterday and is still off of oxygen assistance and doing very well! Praise God! Now if we can just get her to taking all of her feedings by bottle we will be doing so great.

So as I said earlier, I had a not-so-great afternoon. Things occurred today that could potentially help me make some unbelievably life-altering decisions. My heart was so entirely disappointed. But guess what? God had a great surprise to lift my spirits tonight. Tommy and Abigail were lagging behind Wade and me due to a pull up malfunction, so Wade and I proceeded to the NICU alone. When I went to sign in, there was a new announcement there that said the RSV season is officially over and we are no longer limited to the 6 people designated to visit. No one under 12 can visit except for siblings 2 and over! I asked for clarification that Wade could now visit? Yes, he could and Abigail too! Can I hear a Praise the Lord!? So tonight Wade and I went to the nursery and he touched and whispered to his baby sister. He said, "She is so pretty. She is my favorite little sister." Ha! I'm sure he will love both sisters equally when he is 16 and they are pests to him. He held her and when I took her in my arms, he wanted to hold her again. Be still my heart. He is so sweet. Tommy took Abigail back, and Wade went too. She was equally excited.

So today was sweet and I thank God for walking with me, even carrying me mostly, all through this journey. He has carried us all and will continue to be with us from here on out because it isn't over. Please continue to pray for Kaydence's healing throughout her body. Rebuke bad reports. Rebuke the virus. We need healing and development of her brain. Amen.

Comments

  1. Wendy, I am so very proud of you. I just read your blog from Thursday, and was unable to get through it without crying tears of joy and hope. Your strength and faith in God is awesome. You are an inspiration to everyone who crosses your path. You are so blessed to have such a wonderful family and your faith will continue to keep you all strong. I continue to pray for you all, especially little Kaydence for God to continue healing her in every way she needs. I know you will be so happy to have her home and be able to spend as much time with Wade and Abigail. Again, you are always in my prayers.

    ReplyDelete

Post a Comment

Popular posts from this blog

What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best pl…

School Smacked Us in the Face!

I must preface this whole entry with: I'm typing on my phone. Please don't judge me based on potential errors. Ha! School started and man, did it ever smack us in the face here in the Neyland household. It started great. Kids all at school. Mom acting like a modern day June Cleaver: walking a few miles at the track each morning, planning meals, cooking every night, and getting all of my shirt orders done. Then....BAM! "Wendy, this is the school nurse and Kaydence is sick." Or "Wendy, I'm so sorry I'm calling again, Abigail has a headache." Within the first few weeks of school, all three of my kids have missed due to illness. Kaydence missed about 7 days off and on. She'd be done and then I'd get a school call. I think we finally got her straightened out, but geeze Louise, it took a while. She had a stomach bug, an ear infection, and a mycoplasma infection. Oh, wait, haven't heard of that? Me either. Apparently it falls within the same ca…

Oh the Places the Neylands Go

Today was our appointment at the Kennedy Krieger Institute. All I can say is WOW! What an amazing place! But before we get to the details of that appointment, I would like to first share some of the journey here to Baltimore.

We left out on Saturday morning. We stopped in Memphis, Tennessee, and took the kids to Beale Street. While there we ate at the most Memphis kind of place...The Pig. What is better than pulled pork in Memphis? In this bar-diner atmosphere blaring the Blues, I figured we were really in for it as Kaydence Grace is not a fan of loud places. Turns out the kid likes the Blues. Hard core, did not even plug her ears, likes the Blues kid! I can work with this. We made sure to ride in a cheesy horse-drawn Cinderella carriage for Abigail. Abigail's Memphis observation: Why does everyone in the city want money? Homelessness and begging has been a little hard to explain to our small-town kids.

Sunday we traveled on to Knoxville, home of the Tennessee Vols. It is also hom…