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What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best place to start for Kaydence is to focus on feeding therapy. Never in my life did I imagine that I would just like for my kid to ask for a cheeto, or a chicken nugget, or just eat mac and cheese without me smashing it up. Here I am asking for all of that. So I am hoping that this place has the right staff in place to get the ball rolling to some eating miracles.

Kaydence at this time still only eats soft mashable foods, most notably oatmeal, yogurt, mashed banana with peanut butter, and sometimes avocado or sweet potatoes. She drinks juice and pediasure. She has some serious texure aversions and will not accept food from fingers. Sister likes to eat fancy with flatware it seems. She can feed herself, but it is real work for her. Eating in a restaurant is quite a chore. There are some places we just cannot eat with her because they do not have anything on the menu that can be mashed up or because they are blaring music in the background. Kaydence does not appreciate all music the way her mother does, nor does she like a lot of noise.

We would appreciate prayers that we have safe travel, the right staff, and eating success. If you would like to pray ahead for her, please be in prayer also that we are able to get her walking this year. She is so determined to walk. She can walk up and down our stairs unassisted while holding onto the bannister. It is quite amazing and terrifying to watch. Kaydence is also a super bright kid. It usually only takes me one or two times to show her how to do something, and IF SHE WANTS TO, she will start doing whatever it is. This does not necessarily transfer to school, but that is normal for most kids. We appreciate all prayers. She is such a journey each day and I am so thankful for it.


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