Skip to main content

What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best place to start for Kaydence is to focus on feeding therapy. Never in my life did I imagine that I would just like for my kid to ask for a cheeto, or a chicken nugget, or just eat mac and cheese without me smashing it up. Here I am asking for all of that. So I am hoping that this place has the right staff in place to get the ball rolling to some eating miracles.

Kaydence at this time still only eats soft mashable foods, most notably oatmeal, yogurt, mashed banana with peanut butter, and sometimes avocado or sweet potatoes. She drinks juice and pediasure. She has some serious texure aversions and will not accept food from fingers. Sister likes to eat fancy with flatware it seems. She can feed herself, but it is real work for her. Eating in a restaurant is quite a chore. There are some places we just cannot eat with her because they do not have anything on the menu that can be mashed up or because they are blaring music in the background. Kaydence does not appreciate all music the way her mother does, nor does she like a lot of noise.

We would appreciate prayers that we have safe travel, the right staff, and eating success. If you would like to pray ahead for her, please be in prayer also that we are able to get her walking this year. She is so determined to walk. She can walk up and down our stairs unassisted while holding onto the bannister. It is quite amazing and terrifying to watch. Kaydence is also a super bright kid. It usually only takes me one or two times to show her how to do something, and IF SHE WANTS TO, she will start doing whatever it is. This does not necessarily transfer to school, but that is normal for most kids. We appreciate all prayers. She is such a journey each day and I am so thankful for it.


Popular posts from this blog

School Smacked Us in the Face!

I must preface this whole entry with: I'm typing on my phone. Please don't judge me based on potential errors. Ha! School started and man, did it ever smack us in the face here in the Neyland household. It started great. Kids all at school. Mom acting like a modern day June Cleaver: walking a few miles at the track each morning, planning meals, cooking every night, and getting all of my shirt orders done. Then....BAM! "Wendy, this is the school nurse and Kaydence is sick." Or "Wendy, I'm so sorry I'm calling again, Abigail has a headache." Within the first few weeks of school, all three of my kids have missed due to illness. Kaydence missed about 7 days off and on. She'd be done and then I'd get a school call. I think we finally got her straightened out, but geeze Louise, it took a while. She had a stomach bug, an ear infection, and a mycoplasma infection. Oh, wait, haven't heard of that? Me either. Apparently it falls within the same ca…

Oh the Places the Neylands Go

Today was our appointment at the Kennedy Krieger Institute. All I can say is WOW! What an amazing place! But before we get to the details of that appointment, I would like to first share some of the journey here to Baltimore.

We left out on Saturday morning. We stopped in Memphis, Tennessee, and took the kids to Beale Street. While there we ate at the most Memphis kind of place...The Pig. What is better than pulled pork in Memphis? In this bar-diner atmosphere blaring the Blues, I figured we were really in for it as Kaydence Grace is not a fan of loud places. Turns out the kid likes the Blues. Hard core, did not even plug her ears, likes the Blues kid! I can work with this. We made sure to ride in a cheesy horse-drawn Cinderella carriage for Abigail. Abigail's Memphis observation: Why does everyone in the city want money? Homelessness and begging has been a little hard to explain to our small-town kids.

Sunday we traveled on to Knoxville, home of the Tennessee Vols. It is also hom…