Skip to main content

Back to Work

This week I have this really unusual quiet moment to myself so I decided to blog a little. I am currently sitting in my office waiting for a 4-Her to arrive with her mother so we can get her on track for an exciting year beginning at the end of June. I'm so excited for this young lady to step out of her comfort zone and step up to a leadership role. I've been working on her for a year to do this because I recognized her abilities as soon as I met her and watched her among her peers. She makes what I do very gratifying.

I know you are really wondering how Kaydence is doing. Well, good and not so good. For the past 2 weeks she has been so extremely fussy starting about 3ish every afternoon. This continues for the next 6 hours. I'm not sure if she is uncomfortable, in pain, or just wound up a little. I have concluded that we have a reflux issue and we do have medication for it. As a matter of fact, we started a new med tonight. I hope it helps! She also has a little bit of a startle that gets her pretty upset. I don't know if it is just still her Moro reflex or if it is something more. We will see our infectious disease doctor soon, so I hope that we will be referred to a neurologist to check everything out.

It's things like the startle that make me wonder if I have enough faith in God. I question myself about if taking her to a neurologist isn't having enough faith in God. I am praying for the complete healing of her brain, so is my wanting to take her to a doctor really me saying I don't believe He can heal her without a doctor? On the other hand, I believe God sends us to the right people at the right time and that doctors and nurses are His hands. Who is to say that going to a doctor isn't part of the healing? Let me make this very clear however, I do believe that God can heal without the help of earthly medicine. Kaydence's heart is proof. Her pediatrician said that babies' brains are plastic and we don't know how they will turn out. He also said x-rays and such are just shadows and we shouldn't place our faith in shadows. He is so right about this.

No matter what, I will try not to worry. Instead I will work harder to listen to God. God is in the stillness, so I have to work extra hard to find that time each day when it is still. Unfortunately this is about Midnight for me, but that time is so important to me. I hope others find that time to listen.

I can't find a great way to wrap up my thoughts, so I'll just leave with praise God for what He has done for Kaydence, for me, and for my family and friends. I'll continue to listen, to pray, and to praise. Amen.

Comments

  1. Wendy: I think your faith in our God is what keeps you wanting to find answers. Finding the answers by praying to Him and most importantly listening to Him is what makes you such a good Mommy! I continue to keep your sweet family in our prayers.

    ReplyDelete
  2. Never doubt about your faith in GOD. It is the blogs that you write about your faith in our Lord that makes me stop and listen.

    Love,

    Ms Connie

    ReplyDelete

Post a Comment

Popular posts from this blog

Every Day with Jesus is Sweeter than the Day Before

Today started off okay, then went about as south as it can get, but ended up one of the best days EVER! I went home yesterday and boy, homecomings are sweet these days! It doesn't get much better than little arms being so excited to wrap around your neck. As I drove in to my parents' house, there was sweet little Abigail jumping and waving at me. Of course my mother had her out "helping" her in the yard. Then today I got to wake up with my kids. It used to be such a chore to get up in the mornings, and I have to admit that physically I am still very exhausted, but waking up to my kids is a blessed feeling each day now. I was even excited to go to Dr. Blackwell's office today. I carried him, his nurses, and Cheryl strawberries from the Berry Patch in Fairfield. My cousin owns it and I must say the berries are super sweet and awesome. Yes, this is a quick commercial for him! My day was made when Dr. Blackwell thanked me for the berries and I told him they were a t

Kaydence is turning 3!

I realize it's been forever since I've written here, but life is so busy! I felt the urge to write this, because, let's be honest, there is no way Facebook will let me post a status this long. Kaydence turns 3 in a matter of minutes. She will probably be 3 years old by the time I get through writing this post. Where does the time go? It seems like just yesterday I was pregnant with her and feeling like I wanted to just wake up from a bad dream. Today, she is turning into a sweet little girl. Where do I even start? I guess I'll start with a word of thanksgiving that God has blessed me with such a treasure. I still don't understand why He would choose me to care for a child like Kaydence Grace. I'm really unworthy of any blessings, yet He chose me for her and her for me. She melts me every single day. You see, I'm still the same sinner I was when I started this blog. I'm not perfect, but He washes away my sins anyway. I'm so thankful. The sins chang

We are halfway done!

I cannot believe we are halfway done with this journey here in Baltimore! I do feel like we are making some gains here and I am thankful God placed Kennedy Krieger Institute in our life. First of all, I only wish we could have started this a few years ago because when I am on the CMV mommies page on Facebook, I see what other kids with her same symptoms and diagnoses can do versus what Super K has not yet accomplished. "But Wendy, you shouldn't make comparisons!" Yet all parents do. Some days I think maybe I have let her down by not being pushier about her therapy, but then again this has been uncharted territory every single minute of her life. No two CMV kids are alike in their ailments because each brain is affected differently. Once again I am so thankful we are at Our Children's House. It is a nice walk to and from therapy and the weather has been pretty amazing. When we got here it was Texas hot and then it cooled off really low, only to level off to really nic