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Kaydence at 1 month

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A Week Feels Like A Lifetime

So Kaydence, my mother, and I have been here in Baltimore for a week. A very, very long week. I am afraid this may be the longest eight weeks of my life. I have ventured down to the business center in our condo building to locate the computer on which I am typing. I have to be super mindful to log off of everything when I am done! I just can't blog from my phone anymore. It's too hard! But probably not as hard as eating has been for Kaydence.

I'll attempt to give a good description of what she is tolerating thus far. The beginning of the week was the KKI staff evaluating and testing her. The first three meals I fed her. I would feed her what she normally eats at home (peanut butter mixed with mashed banana) and then attempt to feed her what she does not prefer, like strawberry applesauce. Therapists were evaluating her BEHAVIOR during this time. This whole program is actually behavioral therapy mixed with occupational therapy and speech therapy, the majority of it being be…

What Are We About To Do Now?

First of all, I made a note to myself after talking with some friends, that I am going to blog more now. Why now? Where have I been all this time? When I went back to teaching, it kind of wiped out my energy and thinking ability! That has all changed now as I am staying home again.Why did we make the decision for me to stay home again? God just opens doors and shuts them, and this time He told me to shut the teaching door and focus on my family. So that is what I am doing.

This next weekend, we will embark on a new adventure with Kaydence Grace. After seeing some amazing things from a fellow CMV mother about her daughter's intensive therapy program, I decided to ask questions. She told me how wonderful a job the Kennedy Krieger Institute had done with her daughter. I figured what did we have to lose in taking Kaydence across the country for therapy? Nothing. We have nothing to lose (except funds, but hey, we will pay them to someone regardless!) The clinic decided that the best pl…

We are here!

Saturday, we began our journey to Baltimore, for the Intensive Feeding Clinic at Kennedy Krieger Institute. Tommy, my mom, Kaydence and I successfully made it to Love Field and flew Southwest to Baltimore, where a nice lady named Lorraine would meet us and take us to our apartment. Kaydence was a great flyer! She climbed all over her daddy and was up and down in the seat, peeking over the tops at unsuspecting strangers. She manhandled the pretzel bags for the sound they made and watched videos of her siblings and random kids online. We snapchatted away as well. She only yelled a couple of times and the lady in front of us commented on how well she did.

Lorraine came and picked us up as promised. She manages Chase Street Properties in Baltimore, and they began as a company specializing in medical relocation services. She is an angel here on earth for sure. From the moment I spoke with her on the phone, I knew she was sent to help us. She brought us to our little apartment, explaining l…