We FINALLY Got to Hold Her

How's it Going?

When we arrived here in Baltimore on Sunday, I didn't truly know what to expect, but have had high hopes everything will be great. I mean, we got a room when we didn't think we would and Kaydence had been eerily good all the way here except for the one meltdown. Monday morning, I put my dad in an Uber to the airport with a printed plane ticket because there was no way I was going to trust him working any new app on his phone at such late notice. Even Dad was like, "Nooooo. Don't trust me with an app." It makes me chuckle just thinking about it. We got ready for the day. I was pleased to find that all of Kaydence's breakfast essentials were available in the house already. I just needed to get her some whole milk and make sure we don't run out of Carnation. That was another super blessing. We made our way to the Kennedy Krieger Institute on foot. Yes, we walked. That may be my favorite part of where we are staying. We stayed in an office and met all of our...

My Lowest Point

Since we have found happier ground right now , I thought I'd take a moment to share with you what has been my lowest point in this journey thus far - and I hope it is the lowest point period! I know, you're probably wondering why I am regressing to this story, but there may be someone out there who has felt this way and didn't know how to make sense of it, or feels guilty for feeling that way. So the day that I got that call that my amniotic fluid had tested positive for CMV, I texted my pastor and she came right out that afternoon. Tommy, the kids, and I were outside swinging and playing in the sunshine for a little bit when she arrived. She and I went in the house for a little while to pray and counsel. Now, keep in mind, I had already did a lot of thinking before she got there. We again talked about the possibility that God might just choose to take this tiny soul to be with Him. I might not ever know her outside of the womb on earth, but I would know her in Heaven. Pa...

We are finally headed back to Baltimore

The beginning of the school year will be off to a very different start for our family this year. The big kids will begin school on August 14, while Kaydence will not. Instead, she will be gearing up for a month-long trip to Baltimore yet again. We were supposed to go in May, but Tommy's employer changed insurance carriers May 1st. I know it sounds strange, but that is when their insurance year begins, however deductibles follow the calendar year. So we changed from United Healthcare to Blue Cross Blue Shield. The jury is still out on how much I like dealing with either company, but I am thankful and grateful to have health insurance - especially for Kaydence. But since the change was effective May 1st, we wouldn't have pre-authorization for the therapy program through BCBS, and we were originally scheduled to begin the program the last day of April. Kennedy Krieger doesn't offer her particular program in the summer, so we had to wait until August. So here we are. This t...

Daily Living with Grace

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