I just cannot even begin to describe how amazed I am that Kaydence Grace is 1 week old today! It's hard to imagine that last week at this time they had flown my precious newborn from Palestine to Dallas and were afraid that the blood wasn't flowing to and from her tiny lungs.
Tonight when her daddy and I showed up at the NICU she was wide awake and you'd have thought we were the silliest parents around the way we almost knocked each other over to see her. It's the littlest things that keep you going when times aren't exactly how you imagined them to be. It's times like holding a syringe to feed your daughter or just changing her diaper that makes you smile. I feel so blessed just to do those things for her. But oh, when that baby looks up toward me, my heart sings. I know she knows I am her mother and that she is my baby. I try to whisper the Lord's Prayer to her and sing her at least one little song. Tonight while we were mooning over her, I told Tommy to take a picture of her little hand as she was signing "I love you" to us.
Today, she is still on a ventilator. Doctors did change the type of ventilator to help her breathe deeper and easier and now we are hoping she will be off of it in the next 3 to 4 days. Not what we were hoping for, but we will take it! Her platelets are still low, but could be worse. She will probably have to have another transfusion but that's okay too. She also had a transfusion of red blood cells today.
They are watching her cell count closely because she has been given Ganciclovir, which is so stout the nurses have to wear protective covering. Kind of scary they are putting it into our tiny baby, but I trust that God led us to this decision to do this treatment to help stop some of the effects of CMV infection. Ganciclovir can cause some issues with bone marrow, but her white cell counts shot up today and doctors were very pleased with that. Me too! They've been watching the white cell count because if they are too high, she might have an infection, but so far no infection has shown up. Praise God!
I will just keep praying for this baby because God holds her in His hand. There is no better place to put my faith. I hope that others realize this too because life just isn't meant to be lived without faith in our Creator.
Tonight when her daddy and I showed up at the NICU she was wide awake and you'd have thought we were the silliest parents around the way we almost knocked each other over to see her. It's the littlest things that keep you going when times aren't exactly how you imagined them to be. It's times like holding a syringe to feed your daughter or just changing her diaper that makes you smile. I feel so blessed just to do those things for her. But oh, when that baby looks up toward me, my heart sings. I know she knows I am her mother and that she is my baby. I try to whisper the Lord's Prayer to her and sing her at least one little song. Tonight while we were mooning over her, I told Tommy to take a picture of her little hand as she was signing "I love you" to us.
Today, she is still on a ventilator. Doctors did change the type of ventilator to help her breathe deeper and easier and now we are hoping she will be off of it in the next 3 to 4 days. Not what we were hoping for, but we will take it! Her platelets are still low, but could be worse. She will probably have to have another transfusion but that's okay too. She also had a transfusion of red blood cells today.
They are watching her cell count closely because she has been given Ganciclovir, which is so stout the nurses have to wear protective covering. Kind of scary they are putting it into our tiny baby, but I trust that God led us to this decision to do this treatment to help stop some of the effects of CMV infection. Ganciclovir can cause some issues with bone marrow, but her white cell counts shot up today and doctors were very pleased with that. Me too! They've been watching the white cell count because if they are too high, she might have an infection, but so far no infection has shown up. Praise God!
I will just keep praying for this baby because God holds her in His hand. There is no better place to put my faith. I hope that others realize this too because life just isn't meant to be lived without faith in our Creator.
We recently connected on facebook, I have a 2 year old with CMV. Her story is very similar to your Kaydence's. Kaitlyn had to have 4 platelet transfusions before her body was able to regulate things on their own, but the ganciclovir helped immensely. The first few days (and weeks and months...) can be so terrifying. I've been thinking about you, as I know so well what you are going through.
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