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Update on Kaydence

So it is now at the end of March 3, 2012, and I can finally tell you a little bit about what is going on with my precious Kaydence Grace outside of the womb. I've been here since Thursday with her. Tommy has barely left her side. We were fortunate to snag a room at the hospital hotel so Kaydence is just a hallway away.

She needs a lot of prayer. The virus is still active in her tiny body, even though I barely knew I had it, and it does all kinds of things to babies. First and foremost, we are still praying for her liver and spleen to kick in and work on their own. She has received 2 transfusions of platelets because of this, but she hasn't received a transfusion in 2 days. They are still low, but did not drop as low as they had previously. The doctors want to give her body a chance to do its own thing before giving her any more. They are keeping a close eye on her for hemorrhaging issues.

Kaydence also is still on a ventilator. She isn't doing too badly, but she just isn't able to keep her oxygen as steady as it needs to be before they take it out.

On the plus side, her brain measures the correct size, and it all seems to be there. Her ventricles are large and she has calcifications present, but right now she is "plotting well" according to the doctor. I also know she hears us and she opens her eyes and looks at me and Tommy when we talk to her.

Tonight I got to give her a syringe of food. She is doing a great job of eating (through a tube) and pooping. Yea for poopy diapers! Her heart is also doing pretty well. Because of some of the pressure in her heart and thickened tissue, the VSD she had seems to have closed up. That's God for you! Good out of not-so-good.

We ask your prayers for her in all of these areas. We have chosen to begin treating her with ganciclovir to possibly help slow or stop some of the effects of the CMV virus. Please pray this works with no side effects! We will be here a while in Dallas, but it will be that much sweeter the day she goes home.

Comments

  1. Bro. Ray and PamMarch 4, 2012 at 2:25 PM

    Our church is praying for a miracle for all of you. God will take care of yall.

    ReplyDelete

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